Home » RSS

Tag: RSS

Russell Silver Syndrome Podcast - Episode 015 - Part 1 & 2

Episode 015: RSS Podcast and The Future

Content Warning: In this episode, our guests talk about the ableist prejudice, attitudes and language they have faced because of Russell Silver Syndrome. Including bullying in the workplace, use of the M-word,  as well as, the objectification and fetishisation of this proportionate dwarfism.

Episode 015 – Part 1

Episode 015 – Part 2

Kim is joined in this final episode with guest co-host, creative content producer, fellow RSS adult and friend Steph Robson.  They will discuss series 1 of the podcast and answer the question – did the series achieve the dreams and goals that were set out at the start of the creative process?

They also discuss each of their favourite highlights from the series and explain the reasons for their choices – over a two-part episode, along with the questions:

  • Has creating this series between us, along with support from the TARSS group and other foundations, had a lasting impact on us personally.
  • Have our goals and dreams for this series been realised?
  • What feedback or questions have we received?
  • What is the future for the Russell Silver Syndrome podcast?

Finally, they discuss the biggest question of all – will a second series be made?  Is it a viable option and their conclusion on whether they have decided to make it or not?

 

 

Steph (Left on screen) and Kim (Right on screen)
Steph (Left on screen) and Kim (Right on screen)

 

We’d love to receive feedback on the series.  If you’ve enjoyed or have any suggestions on how we can improve the podcast or what subjects you would love to see included, fill out the Listener Questionnaire  >> here <<.

OUR GUESTS

Kim Taylor - Creator and Creative Content Producer - Russell Silver Syndrome Podcast
Kim Taylor – Creator and Creative Content Producer – Russell Silver Syndrome Podcast
Steph Robson - Creative Content Producer - Russell Silver Syndrome Podcast
Steph Robson, Creative Content Producer, Russell Silver Syndrome Podcast
Russell Silver Syndrome Podcast - Episode 014 - Can We Change Society's View of Our Dwarfism?

Episode 014: Can we change society’s view of our Dwarfism?

Content Warning: Discussion about derogative terms to describe people with Dwarfism.

We ask the question in this episode – can we change society’s view of our form of Dwarfism?

Kim is joined by four Russell Silver Syndrome people to discuss questions including:

  • Do you think it is important TARSS take part in trying to change the view many in society have of people with dwarfism/short stature?
  • What term do we find completely unacceptable in regards to terms people think of or say to people with short stature?
  • How do we identify ourselves?
  • Is this podcast series a positive proactive way to inform and educate people about RSS in particular?
Russell Silver Syndrome Podcast - Episode 014 screenshot - Changing society's view of the syndrome
Guests on Episode 0014 – Tod Tevebaugh (top, right), host Kim Taylor (top, left). Imogen Reid ( (middle, left) and Angel Carrola Hennig (middle, right). Hillary Jorgensen (bottom, centre).

Our Guests

Russell Silver Syndrome Podcast - Episode 014 - Guest - Todd Tevebaugh
Guest – Tod Tevebaugh
Russell Silver Syndrome Podcast - Episode 014 - Guest - Imogen Reid
Guest – Imogen Reid
Russell Silver Syndrome Podcast - Episode 014 - Guest - Angel Carrola Hennig
Guest – Angel Carrola Hennig
Russell Silver Syndrome Podcast - Episode 014 - Guest - Hillary Jorgensen
Guest – Hillary Jorgensen
Russell Silver Syndrome Podcast - Episode 013 - Words of wisdom to those that follow in our footsteps

Episode 013: Words of wisdom to those that follow in our footsteps

Content Warning: Discussion of bullying and derogative terms to describe Dwarfism.

With the experience of living as Russell Silver Syndrome (RSS), three RSS women join Kim to share words of wisdom to those that follow in our footsteps.

They talk about how our parents raised us. Goals they have set and have achieved, and words of experience they feel are important to share with families of younger RSS children.

Russell Silver Syndrome - Episode 13 -advice-to-parents - screenshot
Episode 013 Guests: Eve Berman (top, left), Cindy Noll (bottom, left) and Courtney Wunder (bottom, right).

 

Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder

 

Our Guests

Russell Silver Syndrome Podcast - Episode 013 - Guest - Eve Berman
Guest – Eve Berman
Russell Silver Syndrome Podcast - Episode 013 - Guest - Cindy Noll
Guest – Cindy Noll
Russell Silver Syndrome Podcast - Episode 013 - Guest - Courtney Wunder
Guest – Courtney Wunder

 

Russell Silver Syndrome Podcast - Episode 012 - Kim's Parents' Perspective

Episode 012: Kim’s Parents’ Perspective

Kim is joined for this episode by her parents as they discuss how they coped as parents of a child with Russell Silver Syndrome (RSS) born when knowledge of the syndrome was far more limited than it is in recent years.

They discuss what choices they faced and the decisions they made with the information that was available at that time. They will recount memories of Kim’s childhood that they feel shows her personality and independence.

Do they have any regrets about the choices they made for their daughter?

If Kim was born in recent years would they try any treatment options or avail themselves of support that families have the options to use now in raising an RSS child?

What advice do they have for families with young RSS children now?

Episode 012 guests ; Jean and Glenn Taylor (left) Kim Taylor (right)

Family Photos

Russell Silver Syndrome Podcast - Episode 012 - Kim Taylor childhoodd
Photos of Kim Taylor who has the rare Dwarfism Russell Silver Syndrome
Russell Silver Syndrome Podcast - Episode 012 - Kim, and her mum and dad, Jean and Glen
Kim, and her mum and dad, Jean and Glenn

More Family Photos

Kim and her dad, Glenn
Kim and her dad, Glenn
Russell Silver Syndrome Podcast - Episode 012 - Kim, and her dad, Glen
Kim, and her dad, Glenn.
Jean and Kim Taylor

Kim’s childhood photos

Kim at Primary School-age.
Kim pre-school age
The Russell Silver Syndrome Podcast host – Kim Taylor – as a child

Our Guests

  • Jean and Glenn Taylor
Russell Silver Syndrome Podcast - Episode 012 - Jean and Glen Taylor - Kim's Mum and Dad
Guests Jean and Glenn Taylor – Kim’s Mum and Dad

Medical Treatments

Russell Silver Syndrome Podcast Child Grommets - Episode 12
Child Grommets – Ear Tubes
Russell Silver Syndrome Podcast - Craig Splint - Episode-12
Russell Silver Syndrome – Craig Splint
Russell Silver Syndrome Podcast - Episode 011 - When We Were Diagnosed

Episode 011: When were we diagnosed

Content Warning: Medical diagnosis, related trauma, family difficulties


This episode is a very emotional one to listen to, and it was to record.

These three Russell Silver Syndrome (RSS) women showed so much grace, courage and honesty as they discuss their very personal experiences of not knowing about having a form of dwarfism until later in life and the impact that this has had on them.

Episode 11 Guests; Eve Berman (top, left) & Annabelle De Raeymaeker (bottom screen), missing from this screen shot is Clare Halstead.

Our Guests

  • Annabelle De Raeymaeker
  • Eve Berman
  • Clare Halstead

    Guest – Annabelle De Raeymaeker
Russell Silver Syndrome Podcast - Episode 011 - Guest - Eve Berman
Guest – Eve Berman
Russell Silver Syndrome Podcast - Episode 011 - Guest - Clare Halstead
Guest – Clare Halstead
Russell Silver Syndrome Podcast - Episode 010 - Motherhood

Episode 010: Russell Silver Syndrome and Motherhood

The road to motherhood can be challenging and for a woman with a rare form of dwarfism it very often poses extra complications and support.

In this episode, four Russell Silver Syndrome (RSS) women who are mothers join Kim to discuss their personal journeys to motherhood and how having RSS can have an impact and what positive/negative experiences they had along the way.

They will also share words of advice for various groups of people who may be listening and finally they share precious memories of their children.

Russell Silver Syndrome Podcast - Episode 010 - RSS and Motherhood - screenshot
Episode 010 Guests: Annabelle De Raeymaeker (top, left), Eve Berman (middle, left), Steph Robson (middle, right) and Kelly Morgan (bottom, centre).

Russell Silver Syndrome and Motherhood

Russell Silver Syndrome Podcast - Episode 010 - Eve Berman and her daughter, Faily
Eve Berman and her daughter, Rachel.
Russell Silver Syndrome Podcast - Episode 010 - Guest - Kelly, and her daughter, Kambria
Kelly, and her daughter, Kambria
Russell Silver Syndrome Podcast - Episode 010 - Guest - Steph, and her daughter, Isabelle
Steph, and her daughter, Isabelle.

Our Guests

  • Annabelle De Raeymaeker
  • Eve Berman
  • Kelly Morgan
  • Steph Robson – blog
Russell Silver Syndrome Podcast - Episode 010 - Guest - Annabelle
Guest – Annabelle De Raeymaeker
Russell Silver Syndrome Podcast - Episode 010 - Guest - Eve Berman
Guest – Eve Berman
Russell Silver Syndrome Podcast - Episode 010 - Guest - Kelly Morgan
Guest – Kelly Morgan
Russell Silver Syndrome Podcast - Episode 010 - Guest - Steph Robson
Guest – Steph Robson
Russell Silver Syndrome Podcast - Episode 009 - Men and their careers

Episode 009: Russell Silver Syndrome – Men and Their Careers

Two Russell Silver Syndrome men with very different careers from each other join Kim to discuss whether there are negatives or positives to being a man of shorter stature in their chosen career field.

Also in our discussion, they answer questions including the following:

  • What advice would they give to listeners who may not know anything about RSS etc in regards to our lives and abilities in the work arena?
  • What advice they would give to families with younger RSS children?
Russell Silver Syndrome Podcast - Episode 009 - RSS Men and their careers
Episode guests: Brian Flowers (top, left), Tom Wyllie (bottom, centre).

 

Our Guests

  • Brian Flowers
  • Tom Wyllie – website
Russell Silver Syndrome Podcast - Episode 009 - Guest - Brian Flowers
Guest – Brian Flowers
Russell Silver Syndrome Podcast - Episode 009 - Guest - Tom Wyllie
Guest – Tom Wyllie

 

Russell Silver Syndrome Podcast - Episode 008 - Love is in the RSS air

Episode 008: Love is in the RSS Air

Love is in the air this episode as Kim is joined by two Russell Silver Syndrome (RSS) women and their average-height husbands.

  • They talk about how they met – was the short stature an issue?
  • What would they say to those listening not associated with RSS or other forms of dwarfism, who may see a couple like them?
Russell Silver Syndrome Podcast - Episode 008 - Couples - screenshot
Episode 008: Amanda Jenkins (top, left), Angel Carrola Hennig and Anthony Hennig.

Our Guests

Russell Silver Syndrome Podcast - Episode 008 - Guests - Amanda Jenkins and husband
Guests – Amanda Jenkins and husband
Russell Silver Syndrome Podcast - Episode 008 - Guests - Angel and Anthony Hennig
Guests – Angel and Anthony Hennig
Russell Silver Syndrome Podcast - Episode 007 - Men's Chat

Episode 007: Russell Silver Syndrome – Men’s Chat

It is the turn of two Russell Silver Syndrome men in this episode to discuss topics that can affect a man with short stature/dwarfism.

  • Do they think it is important for RSS men to have a ‘voice’?
  • What challenges have they faced in life?
  • And what comments do they want to share with listeners?
Russell Silver Syndrome - Episode 007 - Men's chat - screenshot
Guests on this episode – Kenny Kamm (top, right), Tod Tevenbaugh (bottom, centre) with the podcast’s host, Kim Taylor (top, left).

 

Our Guests

  • Tod Tevenbaugh
  • Kenny Kamm
Russell Silver Syndrome Podcast - Episode 007 - Guest - Kenny Kamm
Guest – Kenny Kamm
Russell Silver Syndrome podcast guest - Tod Tevebaugh
Guest – Tod Tevebaugh
Russell Silver Syndrome Podcast - Episode 006 - Women's Chat

Episode 006: Russell Silver Syndrome – Women’s Chat

Joining Kim in this episode are two Rusell Silver Syndrome women who chat about their experiences surrounding various topics such as confidence and self-esteem, fashion, dating, socialising and other advice they want to share with listeners.

Whether it’s from feeling the self-consciousness when visiting a children’s department for clothes or shoes, to finding the perfect wedding dress for our proportionate form of dwarfism.  The guests explain what it is like to deal with and experience prejudice – in the workplace or when people first meet them. And how one guest explains that ‘faking confidence, can make confidence’.

Russell Silver Syndrome Podcast - Episode 006 - RSS Women's Chat
Episode 006 guests – Kirstyn Rice (top, left), Helen Watson (bottom, centre) with the podcast’s host, Kim Taylor )top, left).

Our Guests

  • Kirstyn Rice
  • Helen Watson
Russell Silver Syndrome Podcast - Episode 006 - Guest - Kirstyn Rice
Guest – Kirstyn Rice
Russell Silver Syndrome Podcast - Episode 006 - Guest - Helen Watson
Guest – Helen Watson