Content Warning: In this episode, our guests talk about the ableist prejudice, attitudes and language they have faced because of Russell Silver Syndrome. Including bullying in the workplace, use of the M-word,as well as, the objectification and fetishisation of this proportionate dwarfism.
Episode 015 – Part 1
Episode 015 – Part 2
Kim is joined in this final episode with guest co-host, creative content producer, fellow RSS adult and friend Steph Robson. They will discuss series 1 of the podcast and answer the question – did the series achieve the dreams and goals that were set out at the start of the creative process?
They also discuss each of their favourite highlights from the series and explain the reasons for their choices – over a two-part episode, along with the questions:
Has creating this series between us, along with support from the TARSS group and other foundations, had a lasting impact on us personally.
Have our goals and dreams for this series been realised?
What feedback or questions have we received?
What is the future for the Russell Silver Syndrome podcast?
Finally, they discuss the biggest question of all – will a second series be made? Is it a viable option and their conclusion on whether they have decided to make it or not?
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Kim is joined for this episode by her parents as they discuss how they coped as parents of a child with Russell Silver Syndrome (RSS) born when knowledge of the syndrome was far more limited than it is in recent years.
They discuss what choices they faced and the decisions they made with the information that was available at that time. They will recount memories of Kim’s childhood that they feel shows her personality and independence.
Do they have any regrets about the choices they made for their daughter?
If Kim was born in recent years would they try any treatment options or avail themselves of support that families have the options to use now in raising an RSS child?
What advice do they have for families with young RSS children now?
Content Warning: Medical diagnosis, related trauma, family difficulties
This episode is a very emotional one to listen to, and it was to record.
These three Russell Silver Syndrome (RSS) women showed so much grace, courage and honesty as they discuss their very personal experiences of not knowing about having a form of dwarfism until later in life and the impact that this has had on them.
The road to motherhood can be challenging and for a woman with a rare form of dwarfism it very often poses extra complications and support.
In this episode, four Russell Silver Syndrome (RSS) women who are mothers join Kim to discuss their personal journeys to motherhood and how having RSS can have an impact and what positive/negative experiences they had along the way.
They will also share words of advice for various groups of people who may be listening and finally they share precious memories of their children.
Joining Kim in this episode are two Rusell Silver Syndrome women who chat about their experiences surrounding various topics such as confidence and self-esteem, fashion, dating, socialising and other advice they want to share with listeners.
Whether it’s from feeling the self-consciousness when visiting a children’s department for clothes or shoes, to finding the perfect wedding dress for our proportionate form of dwarfism. The guests explain what it is like to deal with and experience prejudice – in the workplace or when people first meet them. And how one guest explains that ‘faking confidence, can make confidence’.