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Russell Silver Syndrome Podcast - Episode 005 - The Performing Arts

Episode 005: Russell Silver Syndrome and The Performing Arts

Content Warning: In this episode, our guests talk about the ableist prejudice and attitudes they have faced because of Russell Silver Syndrome. Including bullying in the workplace, as well as, the objectification and fetishisation of this proportionate dwarfism.

In this episode, Kim is joined by three RSS women who all have careers in the Performing Arts.

They each talk about the challenges they have faced in pursuing their dreams.

They discuss what advice would they give to fellow RSS people who may have fears or concerns about being able to achieve their goals in a chosen career.

And is there anything they would like to say to those listeners who know nothing about RSS or other types of dwarfism?

Russell Silver Syndrome Podcast - Episode 005 - Performing Arts - screenshot
Episode 005 guests: Hazel Crafer (top, left), Kim Taylor (top, right). Bottom: Tabbi Coleman (bottom, left), Imogen Reid (bottom, right).

Performing Arts and RSS

Russell Silver Syndrome Podcast - Episode 005 - Guest - Tabbi Coleman - aerial
Tabbi Coleman – aerialist
Russell Silver Syndrome Podcast - Episode 005 - Guest - Imogen Reid - in Fantastic Beasts head shot
Imogen Reid – in Fantastic Beasts headshot
Russell Silver Syndrome Podcast - Episode 005 - Guest - Imogen Reid - Les Mis - body double
Imogen Reid – Les Mis – body double

Our Guests

Russell Silver Syndrome Podcast - Episode 005 - Guest - Hazel Crafer
Guest – Hazel Crafer
Russell Silver Syndrome Podcast - Episode 005 - Guest - Tabbi Coleman
Guest – Tabbi Coleman
Russell Silver Syndrome Podcast - Episode 005 - Guest - Imogen Reid
Guest – Imogen Reid
Russell Silver Syndrome Podcast - Episode 004 - Health Challenges

Episode 004: RSS and health challenges

Three people with the Russell Silver Syndrome join Kim for this episode to discuss health challenges we can face as adults.

We discuss questions such as:

  • What treatments, if any, have you had for your health issues?
  • Do you feel you have to be a strong advocate for your own health issues as so many doctors do not know about RSS?
Russell Silver Syndrome Podcast - Episode 004 - Health challenges - screenshot
Episode 004 guests: Tom Wyllie (top, right), Kim Taylor (top, left), Hannah Gilroy (bottom left) and Marissa Pohlmeyer (bottom, right).

Our Guests

  • Tom Wyllie – Website
  • Hannah Gilroy
  • Marissa Pohlmeyer
Russell Silver Syndrome Podcast - Episode 004 - Guest - Tom Wyllie - Singer
Guest – Tom Wyllie – Singer
Russell Silver Syndrome Podcast - Episode 004 - Guest - Hannah Gilroy
Guest – Hannah Gilroy
Russell Silver Syndrome Podcast - Episode 004 Guest - Marissa Pohlmeyer
Guest – Marissa Pohlmeyer

 

Russell Silver Syndrome Podcast - Episode 003 - Who is our host?

Episode 003: Who is our host?

In this episode, Kim is in the hot seat and being interviewed by guest co-host and the podcast’s co-producer, Steph Robson. She asks ‘Who is our host?’ as we get to know the person behind the podcast.

Kim had no knowledge of what Steph was planning to ask her prior to the recording the episode.

Russell Silver Syndrome Podcast Episode 003 - screenshot - Who is our host?

Our Guests

Russell Silver Syndrome Podcast Episode 002 - Host - Kim Taylor

Russell Silver Syndrome Podcast Episode 002 guest Steph Robson aka Hello Little Lady

Russell Silver Syndrome Podcast - Episode 002 - What is TARSS?

Episode 002: What is TARSS?

In this episode, Kim is going to chat with the guest co-host, podcast co-producer and technical genius of this podcast series, Steph Robson.

They will talk about how she started supporting fellow RSS adults via online forums a number of years ago.

Also, they talk about how Kim created the TARSS, Teens and Adults with Russell Silver Syndrome, Facebook group.

The TARSS group is a very important part of this podcast series. Steph will also discuss her personal projects and activism within the wider dwarfism community.

Russell Silver Syndrome Podcast Episode 002 - screenshot - What is TARSS?

 

 

Our Guests

Russell Silver Syndrome Podcast Episode 002 - Host - Kim Taylor

Russell Silver Syndrome Podcast Episode 002 guest Steph Robson aka Hello Little Lady

Russell Silver Syndrome Podcast - Episode 001 - What is Russell Silver Syndrome?

Episode 001: What is Russell Silver Syndrome?

The only way to start a podcast series about Russell Silver Syndrome (RSS) is to first explain what is this syndrome.

In this episode, I am joined by Dayna Carney from the MAGIC Foundation (USA based) and Rachel Pidcock from the Child Growth Foundation (UK based).

Episode 001 - What is Russell Silver Syndrome? With guests, Dayna Carney from the MAGIC Foundation and Rachel Pidcock, from the Child Growth Foundation
Screenshot of podcast host, Kim Taylor and guests – Dayna Carney, (top left) from the MAGIC Foundation and Rachel Pidcock (bottom centre) from the Child Growth Foundation.

Both ladies will discuss questions:

    • What is Russell Silver Syndrome?
    • What services does each foundation offer to support those associated with Russell Silver Syndrome?
    • Do your foundations support adults with this syndrome?

Kim Taylor family Russell Silver Syndrome photo Kim Taylor Russell Silver Syndrome child photo toddler Kim Taylor Russell Silver Syndrome childhood photo

 

 

 

 

(photos of our host, Kim Taylor as a child with Russell Silver Syndrome)

Our Guests

Russell Silver Syndrome division consultant, Dayna Carney, from the MAGIC Foundation in the USA Dayna Carney from the MAGIC Foundation (USA based)

www.magicfoundation.org

 

 

 

 

 

 

 

Episode 001 - Rachel Pidcock, trustee, from the Child Growth Foundation in the UK

 

 

Rachel Pidcock from the Child Growth Foundation (UK based).

http://childgrowthfoundation.org.uk/

Russell Silver Syndrome Podcast - Episode 000 - Introduction to the Podcast

Episode 000: Introduction to the Russell Silver Syndrome podcast

The Russell Silver Syndrome Podcast is the brainchild of Kirkwall resident, Kim Taylor. The podcast focuses on one of the more rare types of Dwarfism, medically known as Russell Silver Syndrome or Silver Russell Syndrome – or simply known as RSS.

Kim runs an international online support group for people with RSS, joined forces with fellow group member, and creative practitioner, Steph Robson, who also has the syndrome, to get the project off the ground.

The first series of the podcast covers a range of topics that gets to the heart of the challenges and issues that people, from across the globe, with Russell Silver Syndrome, face daily.

So whether they have the syndrome, are a parent or family member of someone with the syndrome, or have an interest in learning about RSS, you can discover how they navigate through life as they share the community’s diverse perspectives.

From finding love to being diagnosed, the podcast aims to provide support and signposting to members of the RSS community. To find out how with determination, strength and the ability to adapt as they live day-to-day despite the challenges our everyday lives can pose and our varied medical experiences.

You can listen to the podcast, and find out more about the syndrome, by visiting russellsilversyndromepodcast.com or follow the podcast on Facebook or Instagram.