Support for Parents with Children with Russell Silver Syndrome

Below are a number of organisations that support parents with children with Russell Silver Syndrome. 

If your organisation helps children with this form of Dwarfism and you would like to be listed, please get in touch.

Child Growth Foundation

Child Growth Foundation contact information

The Child Growth Foundation (CGF) is a leading UK charity focusing on the support and management of rare growth conditions affecting children and adults. We have many parents and children who are members, as well as a large and active adult membership.

The Magic Foundation

The MAGIC Foundation contact detailsThe MAGIC Foundation is a charitable non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth.