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Month: April 2021

Russell Silver Syndrome Podcast - Episode 014 - Can We Change Society's View of Our Dwarfism?

Episode 014: Can we change society’s view of our Dwarfism?

Content Warning: Discussion about derogative terms to describe people with Dwarfism.

We ask the question in this episode – can we change society’s view of our form of Dwarfism?

Kim is joined by four Russell Silver Syndrome people to discuss questions including:

  • Do you think it is important TARSS take part in trying to change the view many in society have of people with dwarfism/short stature?
  • What term do we find completely unacceptable in regards to terms people think of or say to people with short stature?
  • How do we identify ourselves?
  • Is this podcast series a positive proactive way to inform and educate people about RSS in particular?
Russell Silver Syndrome Podcast - Episode 014 screenshot - Changing society's view of the syndrome
Guests on Episode 0014 – Tod Tevebaugh (top, right), host Kim Taylor (top, left). Imogen Reid ( (middle, left) and Angel Carrola Hennig (middle, right). Hillary Jorgensen (bottom, centre).

Our Guests

Russell Silver Syndrome Podcast - Episode 014 - Guest - Todd Tevebaugh
Guest – Tod Tevebaugh
Russell Silver Syndrome Podcast - Episode 014 - Guest - Imogen Reid
Guest – Imogen Reid
Russell Silver Syndrome Podcast - Episode 014 - Guest - Angel Carrola Hennig
Guest – Angel Carrola Hennig
Russell Silver Syndrome Podcast - Episode 014 - Guest - Hillary Jorgensen
Guest – Hillary Jorgensen
Russell Silver Syndrome Podcast - Episode 013 - Words of wisdom to those that follow in our footsteps

Episode 013: Words of wisdom to those that follow in our footsteps

Content Warning: Discussion of bullying and derogative terms to describe Dwarfism.

With the experience of living as Russell Silver Syndrome (RSS), three RSS women join Kim to share words of wisdom to those that follow in our footsteps.

They talk about how our parents raised us. Goals they have set and have achieved, and words of experience they feel are important to share with families of younger RSS children.

Russell Silver Syndrome - Episode 13 -advice-to-parents - screenshot
Episode 013 Guests: Eve Berman (top, left), Cindy Noll (bottom, left) and Courtney Wunder (bottom, right).

 

Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder
Wunderkins Pumpkins by Courtney Wunder

 

Our Guests

Russell Silver Syndrome Podcast - Episode 013 - Guest - Eve Berman
Guest – Eve Berman
Russell Silver Syndrome Podcast - Episode 013 - Guest - Cindy Noll
Guest – Cindy Noll
Russell Silver Syndrome Podcast - Episode 013 - Guest - Courtney Wunder
Guest – Courtney Wunder

 

Russell Silver Syndrome Podcast - Episode 012 - Kim's Parents' Perspective

Episode 012: Kim’s Parents’ Perspective

Kim is joined for this episode by her parents as they discuss how they coped as parents of a child with Russell Silver Syndrome (RSS) born when knowledge of the syndrome was far more limited than it is in recent years.

They discuss what choices they faced and the decisions they made with the information that was available at that time. They will recount memories of Kim’s childhood that they feel shows her personality and independence.

Do they have any regrets about the choices they made for their daughter?

If Kim was born in recent years would they try any treatment options or avail themselves of support that families have the options to use now in raising an RSS child?

What advice do they have for families with young RSS children now?

Episode 012 guests ; Jean and Glenn Taylor (left) Kim Taylor (right)

Family Photos

Russell Silver Syndrome Podcast - Episode 012 - Kim Taylor childhoodd
Photos of Kim Taylor who has the rare Dwarfism Russell Silver Syndrome
Russell Silver Syndrome Podcast - Episode 012 - Kim, and her mum and dad, Jean and Glen
Kim, and her mum and dad, Jean and Glenn

More Family Photos

Kim and her dad, Glenn
Kim and her dad, Glenn
Russell Silver Syndrome Podcast - Episode 012 - Kim, and her dad, Glen
Kim, and her dad, Glenn.
Jean and Kim Taylor

Kim’s childhood photos

Kim at Primary School-age.
Kim pre-school age
The Russell Silver Syndrome Podcast host – Kim Taylor – as a child

Our Guests

  • Jean and Glenn Taylor
Russell Silver Syndrome Podcast - Episode 012 - Jean and Glen Taylor - Kim's Mum and Dad
Guests Jean and Glenn Taylor – Kim’s Mum and Dad

Medical Treatments

Russell Silver Syndrome Podcast Child Grommets - Episode 12
Child Grommets – Ear Tubes
Russell Silver Syndrome Podcast - Craig Splint - Episode-12
Russell Silver Syndrome – Craig Splint
Russell Silver Syndrome Podcast - Episode 011 - When We Were Diagnosed

Episode 011: When were we diagnosed

Content Warning: Medical diagnosis, related trauma, family difficulties


This episode is a very emotional one to listen to, and it was to record.

These three Russell Silver Syndrome (RSS) women showed so much grace, courage and honesty as they discuss their very personal experiences of not knowing about having a form of dwarfism until later in life and the impact that this has had on them.

Episode 11 Guests; Eve Berman (top, left) & Annabelle De Raeymaeker (bottom screen), missing from this screen shot is Clare Halstead.

Our Guests

  • Annabelle De Raeymaeker
  • Eve Berman
  • Clare Halstead

    Guest – Annabelle De Raeymaeker
Russell Silver Syndrome Podcast - Episode 011 - Guest - Eve Berman
Guest – Eve Berman
Russell Silver Syndrome Podcast - Episode 011 - Guest - Clare Halstead
Guest – Clare Halstead