In this episode, Kim is going to chat with the guest co-host, podcast co-producer and technical genius of this podcast series, Steph Robson.

They will talk about how she started supporting fellow RSS adults via online forums a number of years ago.

Also, they talk about how Kim created the TARSS, Teens and Adults with Russell Silver Syndrome, Facebook group.

The TARSS group is a very important part of this podcast series. Steph will also discuss her personal projects and activism within the wider dwarfism community.

 

 

Our Guests

• Kim Taylor – Blog – Lady Thumbelina | Instagram | Twitter | Facebook
• Steph Robson – Blog | Facebook | Instagram | Twitter

The only way to start a podcast series about Russell Silver Syndrome (RSS) is to first explain what is this syndrome.

In this episode, I am joined by Dayna Carney from the MAGIC Foundation (USA based) and Rachel Pidcock from the Child Growth Foundation (UK based).

Both ladies will discuss questions:

• • What is Russell Silver Syndrome?
  • What services does each foundation offer to support those associated with Russell Silver Syndrome?
  • Do your foundations support adults with this syndrome?

 

 

 

 

(photos of our host, Kim Taylor as a child with Russell Silver Syndrome)

Our Guests

Dayna Carney from the MAGIC Foundation (USA based)

www.magicfoundation.org

 

 

 

 

 

 

 

 

 

Rachel Pidcock from the Child Growth Foundation (UK based).

http://childgrowthfoundation.org.uk/

The Russell Silver Syndrome Podcast is the brainchild of Kirkwall resident, Kim Taylor. The podcast focuses on one of the more rare types of Dwarfism, medically known as Russell Silver Syndrome or Silver Russell Syndrome – or simply known as RSS.

Kim runs an international online support group for people with RSS, joined forces with fellow group member, and creative practitioner, Steph Robson, who also has the syndrome, to get the project off the ground.

The first series of the podcast covers a range of topics that gets to the heart of the challenges and issues that people, from across the globe, with Russell Silver Syndrome, face daily.

So whether they have the syndrome, are a parent or family member of someone with the syndrome, or have an interest in learning about RSS, you can discover how they navigate through life as they share the community’s diverse perspectives.

From finding love to being diagnosed, the podcast aims to provide support and signposting to members of the RSS community. To find out how with determination, strength and the ability to adapt as they live day-to-day despite the challenges our everyday lives can pose and our varied medical experiences.

You can listen to the podcast, and find out more about the syndrome, by visiting russellsilversyndromepodcast.com or follow the podcast on Facebook or Instagram.